VNS Update - these updates will be moving soon, to the new website, once i get it up and running...

the boost up to .75 mA has been a big change - it's a lot more noticeable than .50 was...i seem to have become a bit paranoid about making sure the thing's going off - since i didn't know why or how it got reset before, i want to make sure it doesn't happen again. using the magnet will give me a 1.0 mA pulse which causes a pain in my ear while it's going off - very uncomfortable, but hey, i guess it's better than having a seizure!

it always seems to go off while i'm on the phone - i guess that should be expected, since it is supposed to go off every 5 minutes - but i haven't yet learned to use the magnet to stop the pulsing so that i can talk and people can actually hear me. i guess it's because i think of the magnet as an activator for the VNS, and not as a way to STOP the VNS - they told me if i needed to talk for an extended period or if it was painful that i should tape the magnet over my incision so that the VNS won't pulse, but that just weirds me out a bit - i had the danged thing put in so that it WOULD pulse, why would i wanna stop it from doing so?!?!?

the keppra's still kicking my ass - at least i think it's the keppra...i'm just so damned tired all the time! i've been awake for about an hour now, and already i'm ready for a nap...see the neurologist on friday, we'll see what he has to say...